DGA and data altruism: sharing data for the general interest
Data altruism under the Data Governance Act is the voluntary sharing of data, without reward, for objectives of general interest such as research or policy. Recognised data altruism organisations meet transparency and safeguard requirements.
Short answer: Data altruism is the voluntary, non-profit sharing of data — by individuals or companies — for objectives of general interest, such as scientific research, healthcare or policy. The DGA creates a framework of trust through recognised data altruism organisations.
How it works
Organisations that collect data for the general interest can register as a recognised data altruism organisation. They may then use the label, but must meet requirements on transparency, non-profit operation, and protection of the interests of those who provide data. For personal data, consent under the GDPR remains the basis; the DGA adds safeguards and a common consent form.
Why it exists
Much socially valuable data goes unused because people and companies hesitate to share it. Data altruism lowers that threshold with a recognisable, regulated framework: those who provide data know it will be used for the intended general-interest purpose and not resold.
Relevant for you?
For most companies this is not an obligation but an opportunity: if you want to contribute to research or a sector-wide data initiative, this framework offers a safe route. For research and sector organisations, recognised-organisation status can build trust with data donors.
Lees ook: Data Governance Act guide and DGA data intermediation.
Sources
- https://eur-lex.europa.eu/eli/reg/2022/868/oj
Regulation (EU) 2022/868 (DGA), Chapter IV — data altruism and recognised organisations. - https://digital-strategy.ec.europa.eu/en/policies/data-governance-act
European Commission — data altruism under the DGA.
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