EU Regulatory Intelligence — by YRproject

factual analysis · traceable to primary sources

Explainer

DGA and data altruism: sharing data for the general interest

Adopted 2026-06-28 · ≈ 1 min read · Dirk Baaijen

Data altruism under the Data Governance Act is the voluntary sharing of data, without reward, for objectives of general interest such as research or policy. Recognised data altruism organisations meet transparency and safeguard requirements.

Short answer: Data altruism is the voluntary, non-profit sharing of data — by individuals or companies — for objectives of general interest, such as scientific research, healthcare or policy. The DGA creates a framework of trust through recognised data altruism organisations.

How it works

Organisations that collect data for the general interest can register as a recognised data altruism organisation. They may then use the label, but must meet requirements on transparency, non-profit operation, and protection of the interests of those who provide data. For personal data, consent under the GDPR remains the basis; the DGA adds safeguards and a common consent form.

Why it exists

Much socially valuable data goes unused because people and companies hesitate to share it. Data altruism lowers that threshold with a recognisable, regulated framework: those who provide data know it will be used for the intended general-interest purpose and not resold.

Relevant for you?

For most companies this is not an obligation but an opportunity: if you want to contribute to research or a sector-wide data initiative, this framework offers a safe route. For research and sector organisations, recognised-organisation status can build trust with data donors.

Lees ook: Data Governance Act guide and DGA data intermediation.

Sources

  1. https://eur-lex.europa.eu/eli/reg/2022/868/oj
    Regulation (EU) 2022/868 (DGA), Chapter IV — data altruism and recognised organisations.
  2. https://digital-strategy.ec.europa.eu/en/policies/data-governance-act
    European Commission — data altruism under the DGA.

Share on LinkedIn

Read next

W

Data Governance Act guide: what does the DGA regulate and does it affect you?

The Data Governance Act (Regulation (EU) 2022/868) has applied since 24 September 2023 and builds trust for data sharing: re-use of public-sector data, notified data intermediation services, data altruism and the European Data Innovation Board. With the Data Act, the basis under the EU data spaces.

U

Data Governance Act: what it means for data sharing in logistics

The Data Governance Act (Regulation (EU) 2022/868) builds trusted frameworks for data sharing: recognised data intermediaries, re-use of public-sector data and data altruism. For logistics it lowers the threshold to share supply-chain data safely.

U

DGA data intermediation: notification and neutrality for data intermediaries

Anyone acting as a data intermediary connecting data providers and users falls under the Data Governance Act's notification regime and must guarantee neutrality: not using the intermediated data for their own purposes, with structural separation from other services.

Dirk Baaijen

About this knowledge base

Compiled and maintained by YRproject — programme and project direction at the intersection of digital transformation, AI and regulation. Every factual claim is traceable to its primary source. YRproject is led by Dirk Baaijen About & method →

A project or programme? Work with YRproject →

The monthly briefing

AI regulation in five minutes: what changed, what is coming and what it means. No spam, unsubscribe anytime.

Your address is used for this only and stored on our own servers.